Fanconi Anemia Registry
Welcome to the Fanconi Anemia Registry!
Joining the FA registry is a powerful opportunity for individuals with FA and their family members to contribute directly to research that will advance understanding of FA and treatments.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.