Fanconi Anemia Registry

Welcome to the Fanconi Anemia Registry!

Joining the FA registry is a powerful opportunity for individuals with FA and their family members to contribute directly to research that will advance understanding of FA and treatments.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?

For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.